{"id":8,"date":"2019-11-22T14:06:39","date_gmt":"2019-11-22T14:06:39","guid":{"rendered":"http:\/\/sites.edgehill.ac.uk\/cc\/?page_id=8"},"modified":"2023-02-06T14:31:21","modified_gmt":"2023-02-06T14:31:21","slug":"home","status":"publish","type":"page","link":"https:\/\/sites.edgehill.ac.uk\/cc\/","title":{"rendered":"Telling My Friends: talking about having Crohn&#8217;s or Colitis"},"content":{"rendered":"\n<p> Telling My Friends: talking about having Crohn&#8217;s or Colitis was developed with young people and it is based on research with young people and young adults who have Crohn\u2019s and Colitis.  This resource has been endorsed by the Royal College of Nursing.<\/p>\n\n\n\n<p>Our resource is free to download and use. It is made up of: <\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>an Information sheet about <a href=\"http:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2020\/04\/How-to-tell-your-friends.pdf\">how to tell your friends you have Crohn\u2019s or Colitis<\/a><\/li>\n\n\n\n<li>an information sheet about <a href=\"http:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2020\/04\/How-to-support-a-friend.pdf\">how to support a friend with Crohn\u2019s or Colitis<\/a><\/li>\n\n\n\n<li>an information sheet for people who work in schools, colleges and universities about <a href=\"https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2023\/01\/Do-you-work-with-children-or-young-people.pdf\">how&nbsp;to give the right support to those who have Crohn\u2019s or Colitis<\/a><\/li>\n\n\n\n<li> <a href=\"https:\/\/youtu.be\/xAmbCeKnyvk\">a short animation<\/a> for young people, young adults, professionals and other people interested in understanding more about telling friends about living with Crohn\u2019s or Colitis. It highlights some of the challenges young people may face in telling and provides useful ideas for telling friends.<\/li>\n\n\n\n<li>an information sheet for parents of young people with Crohn\u2019s or Colitis to <a href=\"https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2023\/01\/How-to-support-your-childs-friendships.pdf\">help them support their child\u2019s friendships.<\/a><\/li>\n<\/ul>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-embed aligncenter is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe loading=\"lazy\" title=\"Telling My Friends\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/xAmbCeKnyvk?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-vertically-aligned-center is-layout-flow wp-block-column-is-layout-flow\">\n<h2 class=\"wp-block-heading\">What do you think?<\/h2>\n\n\n\n<p>We really want to know what you think about our \u2018Telling my Friends\u2019 resource, <a href=\"https:\/\/www.surveymonkey.co.uk\/r\/Telling_My_Friends_Survey\">please fill out a short survey<\/a> and let us know.<\/p>\n<\/div>\n<\/div>\n\n\n\n<p>Our study explored how Crohn\u2019s and Colitis impacts on young people\u2019s and young adult\u2019s friendships and their mental health. A key finding was that many young people find it difficult to tell their friends about their condition because they find it embarrassing to talk about and worry about how their friends might react. We are working closely with <a rel=\"noreferrer noopener\" href=\"https:\/\/www.crohnsandcolitis.org.uk\/\" target=\"_blank\">Crohn\u2019s and Colitis UK<\/a> who funded our study and linking to their&nbsp;<a rel=\"noreferrer noopener\" href=\"https:\/\/www.ittakesguts.org.uk\/\" target=\"_blank\">#ItTakesGuts<\/a>&nbsp;campaign to help breakdown the ongoing stigma and taboo about bowel conditions.  <\/p>\n\n\n\n<p>Our e-advisory group of ten young people with Crohn\u2019s or Colitis were essential in helping create the animation and resources, and some of them are the voices of the characters in the animation. <\/p>\n\n\n\n<p> For more information, please contact Professor Bernie Carter on&nbsp;<a href=\"mailto:bernie.carter@edgehill.ac.uk\">bernie.carter@edgehill.ac.uk<\/a> <\/p>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image alignleft size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2019\/11\/CC_logo.jpg\" alt=\"\" class=\"wp-image-67\" width=\"162\" height=\"69\" srcset=\"https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2019\/11\/CC_logo.jpg 652w, https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2019\/11\/CC_logo-300x130.jpg 300w\" sizes=\"auto, (max-width: 162px) 100vw, 162px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image alignleft size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2019\/11\/ItTakesGuts_logo.jpg\" alt=\"\" class=\"wp-image-70\" width=\"126\" height=\"131\" srcset=\"https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2019\/11\/ItTakesGuts_logo.jpg 622w, https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2019\/11\/ItTakesGuts_logo-288x300.jpg 288w\" sizes=\"auto, (max-width: 126px) 100vw, 126px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image alignleft size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2020\/06\/Royal-College-of-Nursing-logo-1024x427.jpg\" alt=\"Royal College of Nursing Official Logo\" class=\"wp-image-166\" width=\"203\" height=\"84\" srcset=\"https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2020\/06\/Royal-College-of-Nursing-logo-1024x427.jpg 1024w, https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2020\/06\/Royal-College-of-Nursing-logo-300x125.jpg 300w, https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2020\/06\/Royal-College-of-Nursing-logo-768x320.jpg 768w, https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2020\/06\/Royal-College-of-Nursing-logo.jpg 1417w\" sizes=\"auto, (max-width: 203px) 100vw, 203px\" \/><\/figure>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-columns has-4-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image alignleft is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2019\/11\/AlderHeyChildrensLogo.jpg\" alt=\"Alder Hey Children's NHS Logo\" class=\"wp-image-32\" width=\"181\" height=\"91\" srcset=\"https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2019\/11\/AlderHeyChildrensLogo.jpg 318w, https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2019\/11\/AlderHeyChildrensLogo-300x150.jpg 300w\" sizes=\"auto, (max-width: 181px) 100vw, 181px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image alignleft is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2019\/11\/LiverpoolSchoolTropicalMedicineLogo.jpg\" alt=\"Liverpool School of Tropical Medicine Logo\" class=\"wp-image-35\" width=\"119\" height=\"88\"\/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image alignleft is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2019\/11\/RoyalLiverpoolBroadgreenUHLogo.jpg\" alt=\"Royal Liverpool &amp; Broadgreen University Hospital Logo\" class=\"wp-image-38\" width=\"202\" height=\"68\" srcset=\"https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2019\/11\/RoyalLiverpoolBroadgreenUHLogo.jpg 493w, https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2019\/11\/RoyalLiverpoolBroadgreenUHLogo-300x102.jpg 300w\" sizes=\"auto, (max-width: 202px) 100vw, 202px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<figure class=\"wp-block-image alignleft is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/sites.edgehill.ac.uk\/cc\/wp-content\/uploads\/sites\/256\/2019\/11\/UniversityManchesterLogo.jpg\" alt=\"University of Manchester Logo\" class=\"wp-image-40\" width=\"204\" height=\"131\"\/><\/figure>\n<\/div>\n<\/div>\n\n\n\n<hr class=\"wp-block-separator has-css-opacity\"\/>\n\n\n\n<div class=\"wp-block-columns has-2-columns is-layout-flex wp-container-core-columns-is-layout-28f84493 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<p style=\"font-size:14.5px\">Professor Bernie Carter &#8211; Edge Hill University &amp; Alder Hey Children\u2019s NHSFT<br>Prof Pamela Qualter &#8211; University of Manchester <br>Prof Stephen Allen &#8211; Alder Hey Children\u2019s NHSFT &amp; Liverpool School of Tropical Medicine                            <br>Dr Ali Rouncefield-Swales &#8211; Edge Hill University<\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<p style=\"font-size:14.5px\">Dr Lucy Blake &#8211; Edge Hill University<br>Prof Lucy Bray &#8211; Edge Hill University &amp; Alder Hey Children\u2019s NHSFT<br>Kay Crook &#8211; St Marks &amp; Northwick Park <br>Prof Chris Probert &#8211; University of Liverpool &amp; Royal Liverpool University Hospital<\/p>\n<\/div>\n<\/div>\n\n\n\n<p> This resource will be reviewed in 2023. <\/p>\n","protected":false},"excerpt":{"rendered":"<p>Telling My Friends: talking about having Crohn&#8217;s or Colitis was developed with young people and it is based on research with young people and young adults who have Crohn\u2019s and Colitis. This resource has been endorsed by the Royal College of Nursing. Our resource is free to download and use. It is made up of: [&hellip;]<\/p>\n","protected":false},"author":783,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-8","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Telling My Friends: talking about having Crohn&#039;s or Colitis - Telling My Friends: Crohn\u2019s or Colitis<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sites.edgehill.ac.uk\/cc\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Telling My Friends: talking about having Crohn&#039;s or Colitis - Telling My Friends: Crohn\u2019s or Colitis\" \/>\n<meta property=\"og:description\" content=\"Telling My Friends: talking about having Crohn&#8217;s or Colitis was developed with young people and it is based on research with young people and young adults who have Crohn\u2019s and Colitis. 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