Communicating Lily’s Pain’ was developed with parents of children who have profound cognitive impairment and complex health needs. Since their children often experience frequent, sometimes daily pain, their parents become skilled in assessing and managing their children’s pain. When a new pain occurs or a known pain spirals out of control, parents turn to health professionals for help. The complexity of their children’s healthcare needs alongside the fact that their children’s pain behaviour and expressions are different to typically developing children can create communication difficulties.

This free and downloadable research-based resource will be launched in December and is made up of:

A short animation for parents, health professionals and other people interested in understanding more about how parents and professionals can work together better. It explores some of the communication challenges that occur when a parent of a child, like Lily, presents asking for help for their child’s pain.Information sheets

The ‘Communicating Lily’s Pain’ resource will be shared with specialist children’s pain teams, other health professionals, people delivering education to health professionals, parents, pain networks and charities. We are grateful to funding from WellChild for supporting the creation of this resource.

For more information, please contact Professor Bernie Carter on [email protected].

Wellchild Official Purple Logo